You're amazing.....just the way you areThis morning I began trying to organize old medical records, forms, papers, etc. and it became quite an undertaking. There were literally stacks and stacks of it and in no particular order. So I quit doing it, whew, overwhelming! But I did come across a few that took me back to certain appointments with Elizabeth. I remember lots of doctors examining her like a science experiment, young students staring-confused, nurses trying to entertain her amid the long wait. I remember the the incessant questions, not for no reason, but invasive, and seemingly critical nonetheless. And then I remembered getting the report in the mail and some of the things describing my baby were:
17 partial monsomy syndrome, generalized convulsive epilepsy, muscle weakness and tone, growth hormone deficiency, gliosis, intellectual disability, motor skill disorder, intrauterine growth retardation, FTT (failure to thrive), just to name a few things from one visit.
This isn't to make you sad or pity her, she truly epitomizes strength and sweetness, and it isn't to criticize medical staff, they were doing their job. It is just to “let you in” on a little bit of what she faces as she powers through this life.
Elizabeth is a gift. She is one of those children that brings joy to everyone with whom she comes into contact. Sure she is bossy, pushy, and frustrating to the point of exhaustion, she is my child after all, but you just fall in love with her on sight.
When I am worried about her in the middle of the night, which is often, I start thinking of songs that remind me of her. The music that comes to me soothes my soul, calms inner turmoil, brings back the angst of the past and delights in the today. But there are those certain songs that I feel like were written for my loved one, family, and special moments. Does music do that for you? I could and do listen to certain songs over and over, they never disappoint. That actually turns out to be lucky for me because Johnny will listen to the same song a thousand times plus before he tires of it or I am forced to delete it depending on how deep I have sunk into madness from the sheer repetition. Sorry, this post is about Elizabeth! Anyway, about 4 am this morning I woke up with the song by Bruno Mars, “Just the way you are”, playing in my head. My thoughts immediately went to my precious hearted Elizabeth. This is my song to my sweet baby girl. She is such a power house. Beyond a hard worker, she is an avid learner and constant positive presence. She loves with an open heart under no conditions. She knows no prejudice, envy, or hate.
Here are a few of the lyrics of that song:
Just the Way You Are
By: Bruno Mars
When I see your face
There's not a thing that I would change
Cause you're amazing
Just the way you are
And when you smile
The whole world stops and stares for awhile
Cause girl you're amazing
Just the way you are